She's not in the same catergory as your step daughter, diagnosed in 1992 she was given 3-10 with a probable 5 years, The consultant said do what you want while you can , so we set about travelling , and although the condition is worsening and her good times are getting shorter we did Tuscany(again) and Japan this year, and have booked your country again for next when we will visit Texas for the first time, she wants to visit San Antonio, we try to remain optimistic, but long haul flights and touring holidays may be coming to an end.
As I said not the same as your child at all.
Brian